Saturday, October 25, 2008

Waiting for Godot.

We are sitting here for another day of waiting. The bleeder should be in soon to take Kai's blood. He is usually pretty good with it, but I am sure he will think that painful pricks to the heels are quite the norm in life. In fact at one point we realized he had spent just shy of half of his life so far wearing blinders under the sunlamp.

His numbers weren't down as far as they should have been last night, and we hope they don't go up too far this morning. We had pretty good communication with the staff early on, but that has changed over the last 24hrs or so.

The damn warming table has an alarm that goes off when he gets a tiny bit too warm or too cold-- but the nurses all say it is well within an acceptable range. However, there is no way they can override the alarm, so we have to get up and push a button on the back of the machine to get it to stop it's continuous beeeeeeeeeeeeeep. Every shift change, we get someone in saying they don't really know how to stop it, but they have an idea-- they move everything around and then leave-- at which point the alarm goes off again and again. We finally just started adjusting things ourselves to keep it from going off all night. It seemed to work.

Last night went pretty well and Alana finally got some good rest. Kai was only up every three hours, fed, and went back to sleep.

We expect to go home today, but are prepared for the news that he may need more treatment.

Is that you, Godot?

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